Years ago, I wrote this post to help other women struggling with mammogram call back anxiety. Since then, more than one hundred women have provided mammogram call back stories of their own.
If a mammogram call back has left you feeling anxious or afraid, I encourage you to read this post and the comments below.
More than one hundred women have returned to this post to let me know their mammogram call back results were all clear.
I don’t know what your follow-up scans will reveal, but I believe you will find hope and encouragement here.
My Story
I walked into that examination room and up to the 3D mammogram machine without the tiniest bit of nervous energy. I chatted with the technician as she performed the test. She was a nice older woman who told me she loved her job and performed more mammograms than she could count in a day.
When the test was over, I thanked that smiling tech, put my bra and shirt back on, and cheerfully went about the rest of my day. I never thought I’d be back in that same exam room for a follow up mammogram.
I didn’t expect a call back mammogram on the same day of my exam, because I didn’t think the exam would reveal a problem.
Mammogram Call Back Same Day
So when my cell phone began vibrating on the table beside me I glanced down at the screen, but didn’t think much of it. I didn’t recognize the number, so I choose to ignore it. I flipped the phone over and returned to the game of Monopoly Junior I was playing with my four-year-old.
If the caller ID doesn’t show one of four numbers (my husband’s cell phone, my parent’s house, or one of my children’s schools), I assume someone is trying to sell me something. If it’s important, they’ll leave a message.
At that moment, it didn’t occur to me that the radiologist might’ve found a suspicious area during my annual cancer screening. It didn’t dawn on me that this was a call I didn’t want to miss.
The Dreaded Mammogram Call Back
Later that day, a bright red #4 appeared on the phone icon on my cell. I clicked on it and found two missed calls and two voice mails waiting for me.
I fully expected them to be SPAM. The first was a young woman offering to lower my debts. Yup, SPAM, just like I thought it would be, but the second message was not the robotic voice I expected to hear.
“This is the radiology department…,” the kind, melodic voice said. My heart started to race, and I immediately took a seat.
I restarted the message from the beginning. “This is the radiology department. Please call us regarding your recent mammogram,” the voice said.
Then the caller provided the call back number, a string of digits I couldn’t write down as quickly as she recited them. I returned to the beginning of the message over and over. By the fourth time, I’d gathered them all.
Before I called the radiology department, I tried to settle myself. I wasn’t prepared for the dreaded mammogram call back that morning. Who would be?
I took a deep breath and reminded myself that no one in my family has ever had breast cancer. Then I slowly and carefully dialed the number as though I was entering secret, nuclear launch codes. I paused after I pushed each button on the phone.
I Had a 3D Mammogram and They Called Me Back
The kind receptionist can’t provide many details. “I’m not a doctor. I can’t tell you what they see, only that you need to come back in for a follow up mammogram and ultrasound. The doctor requires additional imaging. Would you like to schedule that now,” she asks?
“Yes,” I say without a moment of hesitation. “That will cost $371,” the receptionist says. “Fine, fine,” I tell her as if money matters at all at this moment.
“Okay,” she says. “You are scheduled for a diagnostic mammogram and ultrasound, but on the day of your appointment you’ll need a referral.”
I hang up the phone and immediately call my gynecologist. Of course, the nurse isn’t at her desk, so I leave a message. Slowly, I state my name. Then I spell it twice and repeat my phone number three times.
I want the gynecologist’s staff to call me back immediately, so I make damn sure they know who I am and which number to call.
I Am Waiting for Mammogram Results, and I’m Terrified
As I wait the world keeps on spinning. I wait for mammogram results that might change everything, and I’m terrified. It’s normal to feel anxiety waiting for mammogram results, but I can’t put my mind at ease.
I sit in my basement, watching my four-year-old race marbles. After each race, my son walks over and shows me the marble that won. I fight back my tears as I watch him and wait for the phone to ring.
Two hours later, the nurse calls back. “You were next on my list of patients to call,” she says, sounding surprisingly chipper. “Let me pull up your mammogram report and read it to you.”
Architectural Distortion Scared Anxiety
“There is a focus of architectural distortion in the left breast,” she says, “and suspicious microcalcifications.”
I’m immediately scared and anxious. My mind swirls with frightening thoughts.
“They want you to repeat the test with a follow up mammogram. This often occurs after an abnormal finding is found during your annual cancer screening. The technicians will get a closer look and then perform an ultrasound. The doctor already took a look at your results. He thinks it’s a good idea to get retested. I’ll send in the referral for you.”
That’s it. The nurse hangs up the phone. She can’t provide any other information. A minute passes, and the phone rings again. It’s the nurse calling back, “Oh, sorry,” she says. “I misread the report. It says it’s NOT suspicious. I thought you would like to know that.”
There is a HUGE difference between suspicious and not suspicious. I’ve never been so grateful to hear the word NOT used in a sentence before. At least now, I’m only dealing with one abnormal finding on my mammogram report.
Dr. Google
I take a deep breath, one of those deep, deep breaths where it feels like your lungs sucked in all of the air around you.
Then I pull out my laptop and immediately consult Dr. Google. I have so many unanswered questions.
- How often do people get called back for a follow up mammogram?
- How often are forty-year-olds diagnosed with cancer?
- Where in the breast is cancer typically found?
I find the answers:
- Did you know that breast cancer occurs most often on the left side of the body?
- Or that 50 percent of malignant lumps appear in the breast’s upper, outer quadrant, extending into the armpit, where tissue is thicker than elsewhere?
- Did you know that younger women tend to get more aggressive cancers and have a lower chance of survival?
No? I didn’t know any of it either.
The tissue in question is on my left side, in the upper quadrant, and I am younger than fifty, so I’m batting three for three.
Mammogram Call Back Fear and Anxiety
This isn’t my first medical crisis. I’ve faced medical traumas in the past. I nearly died of a pulmonary embolism at age twenty-seven, but this time it’s different. An embolism occurs quickly. You don’t have time to worry about it. You barely have time to get to the hospital. Breast cancer is not like an embolism. It’s drawn out and painful, plus this time I have kids.
I am anxious and terrified. Having kids changes everything. I look down at my four-year-old and feel hot tears pouring down on my cheeks. I put down the laptop and snuggle my little one into my lap. The tears drip onto his face, and he looks up and asks why I’m crying.
“I just love you,” I tell him because it’s true.
The Facts: Architectural Distortion
Later that night, I decide to search Google again. This time I’m armed with specific questions about architectural distortion. I’m terrified. I mean, scared right down to the bone. I feel my hands shaking as I type words into my computer. Can I overcome anxiety as it rushes over me?
I’ve received questionable results from blood tests in the past, but I’ve never felt this frightened before. Every website tells me architectural distortion is the third most common sign of cancer and that the most aggressive types of cancer are often discovered this way.
I promise myself I can only search the Internet for a few more minutes. I’ll drive myself crazy if I keep reading about breast cancer. I search one more time and come across an article published in May of 2019 by Moose and Doc.
It says, “Breast cancer commonly causes architectural distortion.” It also says, “Architectural distortion uncommonly indicates cancer. More common is for architectural distortion to be ‘imaginary’ in the perception of the radiologist.”
Architectural Distortion Statistics
An article about mammogram abnormalities also says, “Specialists estimate that around 4% of women who undertake a screening mammogram present with an architectural distortion. The number of those women in which the architectural distortion would represent invasive breast cancer is very low, perhaps 5%-7% of the 4% with architectural distortion, which becomes a much small number.”
My heart stops racing. I have a 93% chance that this abnormality won’t be breast cancer. Why couldn’t I have found that link earlier?
Another helpful piece of information. According to the American Cancer Society, radiologists will call back 10% of women who have a mammogram for further testing. Some women will be called back for a mammogram on the same day they took the initial test. It all depends on how quickly the radiologist reviews images.
The good news: Doctors will give 90% of women returning for a call back mammogram the all-clear after subsequent tests are complete.
My Mammogram: Architectural Distortion
I open my digital mammogram images and scan for the architectural distortion. I’m not a radiologist, but I find the spot immediately. It’s a small, bright white piece of tissue surrounded by four or five long strands. It looks different than the rest of my mammogram.
I browse through the images of my prior annual screening. It looks different from those breast images too.
I take a snapshot of that image and obsess over it for ten days. I look at it once every morning and once every evening before bed. Oh, and another fifty times throughout the day. I can’t stop thinking about that bright white spot on my mammogram. What is it, and what does it mean for me? Will my next mammogram report reveal breast cancer?
The Follow Up Mammogram
On the day of my follow up mammogram and ultrasound, I try to remain calm. I find ways to distract myself. I try to think about anything other than this test or what a positive result might mean. But, no matter how hard I try, my mind starts to wander, and the anxiety builds.
Will they perform a breast biopsy? Will I find out if I have cancer right there on-site? How would I find an oncologist if I needed one? How quickly could I schedule an appointment to be seen?
My mind is racing, but I keep thinking back to that 93% number. The odds are definitely in my favor.
I’m perfectly fine until I go to get undressed. As I place that pink hospital gown around my bare chest, I feel the tears drop down my cheeks. I brush them away. I try to act brave.
My husband jokes about the urine colored walls and other fabulous decorating choices. Then I hear my name.
The technician shows me an image from my first mammogram. She points to that bright white spot of tissue that looks unlike the rest of my breast and explains that I’m being called back due to breast asymmetry. The appearance of that spot doesn’t look like the rest of my breast or my other breast.
She explains that she’ll take additional images and compare them to the images taken during my routine mammogram. If everything looks perfect, I won’t need to undergo an ultrasound. But if anything is wrong, I’ll need an ultrasound and possibly a biopsy. I start to cry. She tells me to try not to worry and lets me know I will receive my mammogram call back results that same day.
Then she places my breast on the imaging machine and presses a clear piece of plastic against it. She moves my body rolls my breast one way and then another, squeezing it each time between the plastic plate. She asks me to hold my breath while she takes the pictures and then says, “You’re all done. The doctor will look at your images now.”
Called Back for Ultrasound After Mammogram
I’m led back to the hallway. I return to my pea-green seat and quietly hope that everything looks okay. Here I am, waiting for mammogram results for the second time in two weeks. The terror begins to overtake my already shaky composure.
I try to console myself, at least I’ll receive same day results for this mammogram call back. At least I won’t have to go home to wait for the news.
The technician steps out a few minutes later. “They’ll need an ultrasound,” she says, and I feel the panic set in.
She just told me they wouldn’t call me in for an ultrasound unless they saw something on my latest mammogram. Clearly, they see something on the second mammogram.
This time my husband can come along. He jokes about the ambiance in the room, the dim lights, the fact that I’m taking my shirt off, and lying on a small bed. I’m thankful he’s with me that he’s able to take off work to sit beside me and crack jokes to ease my mind.
The ultrasound technician squirts gel onto my chest and then starts to move the wand across my skin. I can see the monitor as she moves it over me. A small, black, circular spot appears. She measures it once, twice, and then a third time.
She moves the wand further up and down my breast. Then she abruptly stops. “All I see is a lymph node,” she says, “nothing more. I’ll call the doctor in now.”
Within a minute or two, the doctor appears beside my bed. He shakes my hand, introduces himself, and says, “I don’t see any cancer. I didn’t see anything on your follow up mammogram, but I wanted to be 100% sure with the ultrasound.”
At that moment, I realize I’ve been holding my breath. I slowly and calmly exhale.
Calming Mammogram Call Back Anxiety
If you receive a call back for a mammogram, you are probably feeling overwhelmed and terrified. I understand that anxiety all too well.
Mammogram call back anxiety can leave you feeling nervous and tense. The moment you receive that call, you may feel an impending sense of panic and doom. Please know that you are not alone.
I know how scary it is to wait for a repeat mammogram or additional testing and how alone you might feel. If you are experiencing mammogram callback anxiety, please talk to a friend or reach out below.
Mammogram Call Back Statistics
I wish you the best of luck as you undergo further testing and I hope that your future scans are all clear too.
Getting called back for a diagnostic mammogram is not that unusual. Over a ten year period 50% of women will receive a false positive result. There is good news though. While a lot of women are getting called back to check their breast health, less than 1% will receive a cancer diagnosis.
If you are feeling terrified and anxious reflect on that number for a moment. The majority of women who return for a follow up mammogram will be given the all clear!
Mammogram Call Back Stories
Not so long ago, I scoured the Internet in search of happy endings. Now readers stumble across these words and leave their mammogram call back stories in the comments below.
If you are feeling nervous about a mammogram callback please read the words of the brave women who kindly shared their stories below. I hope their stories reduce your fears and anxieties.
If you receive good news after your call back mammogram please let me know. Each comment helps other anxious women who stumble across this post in search of good news.
** Part two of this story can be found here: Life is Fragile: Make the Most of Limited Time.
I am 73 years old and have a call back mammogram and ultra sound scheduled for Nov 23…day before thanksgiving UGH. I have been crying for 3 days and no sleep. I have been very amiss over a number of years in not getting a mammogram. It’s a long story why, but the short of it was I basically was sexually assaulted ( had my breast fondled by a male nurse as he removed the electrodes after an EKG) I have had EKGs before and know what he did was wrong, plus he asked me if I liked it!! Then when I reported him to the head of the practice I got a letter theatening me with a lawsuit. When I requested my records they said they’d send. They never did and now they are lost or they destroyed them. I had an extreme mental breakdown and stopped going to doctors or having other medical exams including my mammograms. I just recently found a great women’s medical practice and they insisted I start my mammograms again. So now my recent 3D mammogram comes back with dense breasts, some calcification, possible subtle distortion in right breast and oval focal asymmetries in left. My mind is saying it’s my fault for stopping mammograms and at my age its cancer on both sides. GOOGLE is not my friend. I don’t know how I’ll get through the next 10 days. I’m a mess.
@Judy, I’m sorry you went though that and can totally understand why you would not want to go to the doctors. I understand what you say about Google. I really googled it for information and because I wanted to hear that most cases are benign. It’s frustrating that I’ve heard nothing from a doctor. The radiologist doesn’t talk to you. You just go from one test to another. At least in my case, I had a mammo, then a diagnostic mammo, and now an ultrasound scheduled for Tuesday. I’ve had myself completely sick by scouring the internet for some comfort just to end up terrified that this is looking like cancer. Google really isn’t your friend! I just made a deal with myself that I am not googling anything else. My husband always remains calm in these situations because he always says “you can’t change it, so don’t worry about it.” I know easier said then done, but I’m gonna try really hard to take it as it comes and try to not stress over it. Have you been able to speak to a doctor? Maybe they could call your nerves. I do know a lot of mammo call backs are benign. They just have to do their due diligence, especially with dense breast. I have them too. I wish you luck.
I hope your follow up exam is all clear!
It’s been 18 days since I received the dreaded “call back” after my routine mammogram. I have been having mammograms annually for 20 years and this is the first time that I have been recalled for a diagnostic mammogram and ultrasound.
The first thing that alerted me that something was wrong was when I received a text a couple of hours after my routine mammogram telling me that there was a new entry in my health portal. There, I found the terrorizing words “asymmetric distortion” and “inconclusive results”. It was another day before I received a call from my PCP to schedule the follow up. In that time, I experienced the most intense feelings of panic, dread and fear. Those feelings weren’t helped by the news that the earliest that I could get in to have a diagnostic mammo was six weeks away! Something is terribly wrong with a system that is so overbooked that women are asked to sit in a horrible place of limbo for that long! I inquired if there was a “cancellation list” and was told “No, but you can call back every day to see if anything opens up.” I was thankful for the compassionate voice on the end of the phone line who, after a couple of calls, was able to offer me an appointment today (November 18th) at one of their sister clinics about 20 miles away. I would have gone to the moon if it meant I would be put out of my misery sooner!
I waited to post this because I wanted to be able to give hope and peace to women like me who use this site to survive the nightmarish waiting. I am SO thankful that I found it as I desperately searched the net for any good news. I’m not exaggerating when I say that I read the comments almost every day as a way to tamp down my anxiety and give me peace. Thank you, thank you to each and every one of you who have shared your positive outcomes.
And now, it’s my turn! This morning, I had my diagnostic 3D mammo and follow up ultrasound (ouch!) and I am so thankful to report that I received the “all clear”. A pesky and “persistent” lymph node had messed up my spotless record but it is not a problem. I can resume my annual schedule. Ladies….I had absolutely convinced myself that I had cancer….I was visualizing my grandchildren growing up without me…I was unable to overcome my fear. But, your stories kept me from going over the edge and I am happy to add mine to the bigger story of women supporting women at the most vulnerable and scary place a woman can find herself. Peace to you all.
Thank you for returning to share your story!
I had my annual screening mammogram recently. The experience wasn’t the best. The technologist wasn’t personable, and she seemed to rush through my mammogram. Even my husband, who waited for me in my dressing/waiting room, was shocked to see me return so quickly.
The next day the dreaded “call back” came, but quicker than any “call back” I had received in the past. I was so scared and thought it must be serious for them to call me so soon after my mammogram. The radiologist had found new nodularities in my left breast. “What did that mean?” , I wondered. So I began my online searches. The best I could determine was that the density had increased in certain areas. Why now? I’m 69 1/2 years old. I had to wait 12 more days before I could get an appointment for a spot compression and possible ultrasound. I asked God to give me peace, and I did pretty well until the day before and morning of my appointment. My hands kept shaking and knees felt weak from fear.
Once I arrived at the breast health center (with my husband for support), everyone was so upbeat and caring toward me. After 5 views of my left breast were taken, the technologist, who was very sweet, walked me back to my waiting/dressing room and said she would talk to the radiologist to determine if an ultrasound would be needed. In her opinion, it would be. Just hearing that felt like a gut punch. In my mind, it must be bad to warrant an ultrasound. Well, an ultrasound was indeed needed. The ultrasound technologist was kind and upbeat and tried to engage me in conversation. I was too scared to say much. She performed the ultrasound and then informed me that the radiologist on duty historically has 100% of “call back” patients have an ultrasound following a spot compression. That made me feel a little better. I think she insane needed to hear that. After she sent the images to the radiologist, she said the radiologist would be out shortly to perform the ultrasound again herself just to confirm that the images sent to her agreed with what she sees first-hand on the ultrasound screen in real time. What felt like an eternity resulted in a diagnosis of two small cysts in my breast. I will have my annual screening mammogram in a year.
I’m so grateful for good results after getting that dreaded “call back” and having to wait nearly 2 weeks.
Thank you for telling us your story. I’m glad you received good results.
Thank you so much for this post! Your experience along with the comments from other women really helped me deal with callback anxiety.
My story is very similar to yours. Routine mammogram, no worries that day. I was shocked to see “Abnormal” and then “asymmetry with possible distortion”. It’s terrifying when you start reading online. I thought I had cancer for sure. Then my pcp messaged that the results were abnormal and I’d get a call to get more views. 🙁
What i didn’t realize is that there was a letter in my chart telling me to call them. Just a good idea to check that since it delayed my scheduling a bit. That said, they did get me in quickly.
I was so nervous going back in, and freaked out when they called me back in for even more views!! But it turns out the Dr. Was just being cautious. I can appreciate that, and she said that it was just superimposition of normal breast tissue. Whew! I had never been so relieved!! I’d been reading the comments section of this post while waiting for those results!
So thank you again for your post. The good news is better technology is catching more things, many of them benign. Remember that if you are in waiting hell. Tough to do, I know, but hopefully reassuring in some small way!!
Thank you for returning to tell your story. I’m glad that your results were all clear.
Thank you so very much for this forum.
I had a biopsy of a small growth on my face six weeks ago. This was the first biopsy I’ve ever had. The ten-day wait for the results was beyond terrifying. I eventually got the all-clear and felt ecstatic. The pink cloud lasted until…
A week ago I had my annual screening mammogram. I got “the call” the next day and the nurse told me they found asymmetry in my left breast so I would have to go back in for additional imaging and possibly an ultrasound in a week (this was Thanksgiving week, so that made it additionally sucky).
I read this forum forwards and back and kept trying to reassure myself, but I was petrified, especially on the heels of the other cancer scare. I meditated, I prayed, I talked to family and friends, but I was still very scared.
I went in today for the additional screening, I was nauseous with fear. Then the tech said they would need an ultrasound. I felt my chances of being cleared just got smaller. It was a long ultrasound. Then the doc came in and said everything was normal, but she herself wanted to do a few extra minutes of ultrasound. In the end, I got the all-clear, she said she almost canceled the ultrasound but wanted to be sure.
Here are a few things that did help me not be even more panicked: The only safety in being present in each moment. I kept repeating even in the waiting room, “in this very moment everything is still ok” Then to ground myself even more in the present moment I started describing out loud everything I saw in the waiting room. My mind couldn’t be in two places as I was doing that. Moment by moment. Also deep in-breaths and long exhales.
I hope everyone reading this forum while waiting to go back in gets good news.
One question: I got the all-clear earlier today and was immensely relieved, but I don’t feel like all is back to normal quite yet. The waiting trauma probably needs a few days to clear?
Thank you for leaving this comment. I still experience mammogram trauma every time I return. I’ve never written about it, but perhaps I should. I do remind myself that it’s best to have them catch things early if there is a problem and force myself to return every year although I’m much more anxious than I used to be.
Thank you for sharing your mantra. Great suggestion.
I am 41 and had my second mammogram on Friday. I got the dreaded call today that there are 2 masses in my left breast. She said they are probably cysts but my breasts are so dense they can’t tell. I’ve known since a teenager that I have dense, fibrocystic breasts. I’ve had many cysts in my lifetime but that isn’t erasing my anxiety right now. I am a ball of nerves and the first available they had was in 12 days! Coming across this article and reading the stories is helping.
@FL124, I know 12 days is a looong time. I had a slightly shorter wait, 7 days. I found that one day at a time feels more bearable, actually, one hour at a time is even better. Hope you get good news
I wish you the best!
Ladies, I just wanted to add another positive, happy outcome. I, too, got the dreaded mammogram call back the day before Thanksgiving. I have high anxiety normally, but this kicked it into high gear. All I knew from the call was that the Dr found asymmetry and distortion on my right breast. Google is not your friend. I immediately convinced myself after doing too much research, that it was my turn to get that horrible diagnosis. To wait an agonizing week was difficult. I could not sleep or eat. I was a wreck. This blog was the only thing that calmed me. I read the stats, but someone out of 10 was not going to have a good outcome. Why not me? I’m not exempt. The day of the call back came. Another 6 pics of my right breast. It did not help that when I walked into the room my previous mammogram was on a screen, blown up in size, with the suspicious area circled. It terrified me. After that, the technician said she was going to show them to the Dr and let me know. More waiting. She came back and Dr still wanted an ultrasound. Ugh, panic again. Walked into the ultrasound room and the tech assured me that 90% of call back mammograms also included an ultrasound to be 100% sure. She worked her wand, then left and said she or the Dr would be back in to talk to me. 10 min later she came back and said, ” ALL IS GOOD” She said I had several cysts, that are new to me. I almost passed out with relief.
Ladies, please know that distortion or asymmetry can mean absolutely anything! It mostly ends up being very benign. Remember, the stats are on your side and breathe. I can say that now, but when I was going through it it was tortuous.
I wish you all the same good results. I prayer in the dressing room for all of the woman waiting as I have been and continue to do so!
Thank you for returning to tell your story. As you know every comment provides hope for the next person who stumbles upon this post!
Thank you for sharing your story. I’m currently waiting to MRI, because of Architectual distortion. I’m finding comfort in everyone’s post. Thank you ALL for sharing.
I hope your follow-up results are all clear Elisa!
I want to tell you how helpful and hopeful this post has been for me. My situation was very much like your own – a finding of “architectural distortion” that sent me down a rabbit hole fraught with anxiety and fear. I Dr. Googled myself sick! In the weeklong wait between my screening mammogram and my diagnostic mammogram, I’d refer back to this post when my anxiety was getting out of hand. It was very comforting to read about your experience and the comments. Thankfully, my diagnostic mammogram was clear! Thank you for documenting your experience and sharing it!
Thank you for letting me know how much my story and the hundreds of comments have helped you. I’m so glad you returned to let us know your follow up was all clear!
I promised myself after I got through the dreaded call back that I would post something here to help others out there. This site definitely helped me when all I could find was negatively online! I had a routine 3D mammo done and the next day I got a call saying it was inconclusive and the radiologist needed to take a closer look. I went numb. My mom was just diagnosed with stage 0 breast cancer so I was already anxious . But more than that being a new mom all the horrible thoughts went through my head and I made the mistake of googling “architecture distortion.” We all not to do it but we all do it. I didn’t sleep for five days and was basically hyperventilating the entire time until my diagnostic mammo and ultrasound. Yea the radiologist recommended both. Throughout the process everyone had a poker face and no one said much. Finally the radiologist said under her breath… I don’t really see anything…. literally started tearing up. I asked if I could hug her and she said not yet as she wanted to do a few more passes of the wand. I said more prayers. Talked to my dad in heaven again and then she said…. I just don’t see anything. There’s a little spot that looks weird but I think that’s just you! Okay I’ll take it!!!!! The nurse afterwards said that if any little things looks off from the prior mammo they want to be sure. Maybe the tech positioned my boob wrong, maybe the compression wasn’t enough… the point is. Ladies – don’t make yourself sick with worry as most times the call back is purely to err on the safe side!!!!
Thank you for returning to share your story. As you know, every comment helps another woman facing a callback of her own. I only wish I could get this post to rank higher on Google, so this positive post was the first one women read!
I wish I had found this weeks ago, this would have helped me feel less alone. I have had routine mammogram since I turned 40, and last month at 46 I got my first recall mammogram.
The day of my annual mammogram, I didn’t have a worry in the world. I knew what to expect I knew with implants I would have extra views, and I just knew I would get the same results I always have later that day. Well the day passed, no results, the next day passed no results. I was beginning to worry thinking they needed to have a 2nd or 3rd opinion. I tried not to think about it, and go about my day- which mostly helped. Then I had the weekend to wait- pure torture. Final I got the notification that my test results were available. I frantically read the message and these were not my normal results. I had focal asymmetry on the left breast and the upper quadrant and needed more imaging.
I Googled like a mad woman feeling pure panic and terror. There would be moments that I felt better about things I read, then there were others things I read that only reinforced my fear. So, I stopped Googling and tried to distract myself with Netflix. I got the call 2 days later to schedule the recall mammogram. The soonest they could be me in was 4 weeks away. So, through Christmas and New Year’s I existed in a state of low grade terror every day. I tried not to do research, but I couldn’t help myself. The limbo was terrifying. I did talk to a friend in December and she told me she had the same kind of call back and it ended up being nothing. That calmed my nerves for a day or so.
I tried my best to enjoy the holiday’s but it was hard. As my period came and went for December and being close now in January, I was hyper aware of the tenderness I feel before my period starts. I looked frantically at images of women who had breast cancer and compared. I was convinced I had some early stage maybe super aggressive cancer that had developed.
Well today I had my repeat mammogram with CC spot compression with tomosynthesis, MLO compression with tomosynthesis, MIL compression with tomosynthesis, and ultrasound of my left breast. I woke up an hour early with intense anxiety, I got dressed and felt dread. I fought back tears. Thankfully, my husband was able to come with me, and I tried to hide my tears on the ride to the Breast Clinic. I was able to calm myself enough to check in and be composed. I think I was in a state of shock that when I did the mammogram I didn’t cry I was on auto-pilot.
I then got the call back for the ultrasound, and that kicked in new panic. I knew I didn’t want to look at the screen. I knew my breast was tender because my period will start next week. I knew that it was probably going to be nothing. But tears streamed down my face as she performed the ultrasound. Both the mammogram technician and the ultrasound tech were not to talkative. I told them both I was terrified so maybe they just didn’t want to say anything that would increase my anxiety. The mammogram tech did say that recalls are common, and assured me breast pain before your period is normal, and with implants sometimes imaging can be challenging.
As I waited for the doctor’s results after the ultrasound my husband texted to reassure me I would be okay. And not matter I get checked yearly, so if it is the dreaded cancer they caught it early. As I lay there waiting for the results, I had planned out my treatment, and next steps. Terrified. Thinking about how I would tell the kids.
Then the radiologist came back and say it was all clear, I just had a band of dense tissue, and the focal asymmetry was a superimposition of normal breast tissue. I cried and cried with joy, relief, and the release pressure of being in a state of fear for 4 weeks.
As I right this, 4 hours after my results, I have re-read the results a million times to e sure it said no malignancy and I still have some anxiety. I can’t believe just a few short hours ago I was in fear of my life, and now all is clear.
I will be gentle with myself in the coming days, and give myself time for the anxiety to come down.
Thank you for this page and comment section! I hope more find it as they wait and are comforted.
Thank you for returning to leave a comment. So many women come across this post and read the comments in search of hope for their next mammogram. I appreciate the time and effort you took to retell your story. I’m glad you received the all clear.